How
do you prevent mood disorders from destroying you or your loved ones’ lives? By
knowing about them.
S.M.I.L.E.:
See it, Manage it, Improve upon in, Let it go, Expect it to be better
Trouble begins
The
troubles started 3, 4 years ago. At first, things seemed benign. I just seemed
unmotivated. But the troubles would eventually chase away my husband, convinced
that I was a bitch who had never loved him, in another continent of the world.
After
he left, I wandered in the otherworldly city for a month before I started
seeing a psychiatrist referred by him and taking meds, a habit I will likely
need to keep for the rest of my life.
My
husband, who I’d call the Bear because he really tried to protect and help me,
lived in this condo with me in the quiet part of town. He is a kind, talented,
smart, and hard-working guy, with cute eyes, a wicked smile and a wiz-kid kind
of humor. As information professionals, the Bear and I were used to working from
home. We would occupy different sides of the room, holler across the room when
we thought of something amusing to tell each other, and then revert our
attention back to the screen.
Sometimes
we’d dance and sing in the condo too. I exploded in bad temper from time to
time, but generally we lived peacefully together.
When
we were dating we were pretty childish and silly and we said we were like two
little fools in the woods. The condo was like our little hut in the wood. We
lived in it like two little self-sustaining animals. Well, four. We adopted two
cats: a skinny black cat (“my cat”) and a big fat Maine Coon (“his cat”).
When
it started, I was just watching tv. I’d watch shows on YouTube. Since YouTube
had a size limit, each show would be divided into 5 segments: 1, 2,
3, 4, 5, and each segment would play for about 10 minutes.
Soon after I started watching tv online, I got very good at going through these
1, 2, 3, 4, 5 segments.
It
was a state that I’d call binge tv-watching. It sounds pretty tame and lame,
but very soon I was unable to not
watch tv when I was at home. Since I worked from home sometimes, when I was not
working I developed the habit of watching tv as soon as I woke until late at
night. I would start with my favorite show, then when it was over, feverishly
clicked for another show as soon as possible. I would watch tv non-stop for
hours, only stopping to drink the occasional water or eat the necessary meals.
I
couldn’t tolerate not watching tv during those seconds or minutes that I had to
switch from segment to segment or from show to show. When a segment ended, I
would get depressed (though at the time I didn’t realize it consciously), and
to avoid those seconds of depression, I trained myself to start a new video
segment in the shortest time possible.
When
the network was slow or down, I got nervous or irritated.
I’d
stay up as late as I could, and became highly reliant on the tv programs to put
me to sleep. The Bear bought the iPad 1 when it first came out, and although
iPad 1 was much clunkier than the latest models, when my tv habit developed I
basically snatched the iPad from his hand and monopolized it. I’d hug it close in
front of me, laying on the little guest bed we had in the work room, and watch
shows late into the night until I could fall asleep.
Sometimes I went through
periods of not watching tv as much, but slept a lot.
Much like binge tv watching,
I binge slept.
Have you tried waking up
whenever you want in the morning, checking emails, watching some tv, eating
lunch, then having a nap, then watching more tv, then eating dinner, watching
some more tv, then falling asleep with the screen still on till you wake again?
I could do this for days,
weeks, even months. Neither of us suspected that it was the start of a serious
problem.
I developed an odd way of
sleeping/watching: curling up in fetal position on one side, propping up the
iPad against a side table, then, when I got tired of that position, turned over
to fetal position on the other side and propped the iPad up against the wall,
never taking my eyes off the screen the whole time.
The Bear noticed that I was
sleeping a lot, but since I had always been a slightly inactive girl, we never thought
that that could be a warning sign of an unhealthy mind.
I still have a video on my iPhone
taken by my Bear. In it I was taking a nap on the couch probably right after
lunch. Despite the broad daylight shining bright outside, I slept as if there
was no tomorrow. He thought I was adorable, oblivious of the foreboding of a
long, dark storm.
By the time I realized it,
this kind of binge sleeping/tv-watching had lasted on and off for almost 4
years. It only ended when the Big Change came.
During a depressed phase,
symptoms include:
·
feelings
of sadness or hopelessness
·
loss
of interest in pleasurable or usual activities
·
difficulty
sleeping; early-morning awakening
·
loss
of energy and constant lethargy
·
sense
of guilt or low self-esteem
·
difficulty
concentrating
·
negative
thoughts about the future
·
weight
gain or weight loss
·
talk
of suicide or death
---
Bipolar disorder is a mood
disorder rather than a personality disorder... To me, mood is the equivalent of
weather... Weather is real... It’s absolutely real. When it rains, it rains. If
it gets wet, you get wet. There’s no question about it. Also true about weather
is you can’t control it. You can’t say if I wish hard enough, it won’t rain.
Equally true is if the weather is bad one day it will get better. What I had to
learn was to treat my disorder like the weather...
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(Stephen Fry of Monty Python,
talking about his experience with manic depression)
Up States
One or two years into the
intensive tv watching and sleeping, I started acting strangely.
Again, it was not obvious at
first. During long periods of inactivity, one of those days I just woke. And
when I woke, I felt guilty for having wasted so much time and wanted to do
something.
I did a lot of things when I woke:
·
Volunteered
·
Tried
to change career
·
Made
new friends
·
Tried
new things like clubbing, partying
·
Tried
to start a new business
·
Travelled
and found peace in travelling
·
Explored
different cities as possible places to move to
I was often very enthusiastic when I started those projects, which had varied success.
When the ideas ran out of steam, I went back to sleepiness and tv watching.
I brought strange things into
our lives.
Like that one time when I was
convinced that I should get a non-profit job to make my life full. I applied
for an “Online Media Specialist” position at a local non-profit. I had no
experience whatsoever with running online campaigns, though after reading up on
two books about managing online campaigns for NGOs, I convinced myself that I
could do that job and it would be fulfilling. I interviewed. I even impressed
the hiring manager enough in my first phone interview to get a second
interview. Of course I didn’t get the job. Disappointed, I went back to binge
sleeping/watching.
I also tried to make friends
with my Bear at the time. I was convinced that our lives were too lonely, and
wanted to expand our social circles. While it was somewhat true that we were a
bit isolated, I viewed it was a life-or-death issue.
During a manic phase,
symptoms include:
·
heightened
sense of self-importance
·
exaggerated
positive outlook
·
significantly
decreased need for sleep
·
poor
appetite and weight loss
·
racing
speech, flight of ideas, impulsiveness
·
ideas
that move quickly from one subject to the next
·
poor
concentration, easy distractibility
·
increased
activity level
·
excessive
involvement in pleasurable activities
·
poor
financial choices, rash spending sprees
·
excessive
irritability, aggressive behavior
We met a friend who was a typical social center of influence. He generously introduced us to his circle of friends. I wanted to make more friends very much, but was very nervous about it.
My Bear had been supportive
of all of my strange activities. He is just a Saint.
One time, when a new friend
didn’t call me back, I got incredibly depressed. I was convinced that nobody
liked me, and nobody wanted to make friends with me. I cried violently for over
an hour. My Bear tried to soothe me, assuring me that people liked me, that the
friend just happened to not return my call but still wanted to me my friend
(that particular friend would eventually become a good friend of mine).
Pretty ridiculous, huh? That
was one of the first times that I had the kind of “manic-depressive” episode
that would later become chronic and cyclic.
The clinical reality of
manic-depressive illness is far more lethal and infinitely more complex than
the current psychiatric nomenclature, bipolar disorder, would suggest. Cycles
of fluctuating moods and energy levels serve as a background to constantly
changing thoughts, behaviors, and feelings. The illness encompasses the
extremes of human experience. Thinking can range from florid psychosis, or
"madness," to patterns of unusually clear, fast and creative associations,
to retardation so profound that no meaningful mental activity can occur.
Behavior can be frenzied, expansive, bizarre, and seductive, or it can be
seclusive, sluggish, and dangerously suicidal. Moods may swing erratically
between euphoria and despair or irritability and desperation. The rapid
oscillations and combinations of such extremes result in an intricately
textured clinical picture.
(“The Unquiet Mind”, Kay
Jamison, Ph.D.)
Fast running mind
Now I know more about what
had happened, I feel incredibly sorry for the times I was manic to my Bear.
We were living away from our
families and led a typical “young professional” life. When my manic-depressive
episodes hit, he had to bore those attacks by himself without any help or
protection. While he was very brave and kept assuring and helping me, I was
only getting worse. It was highly stressful to him.
I continued to do strange
things.
I remember taking showers and
being convinced that everyone I knew thought ill of me. I would get very hurt,
and at the end of a shower, I’d utter to myself “fuck everyone and
everything!”
I became convinced that I
needed to be away from everyone and everything.
I pushed my Bear away more
and more. That was obviously very hurtful to him.
There were other things I did
that I did not recognize as signs of symptom until very recently.
Like one late night exactly 3
years ago, I drove the car alone to a lake nearby and paced around it. I speed-walked
and ran around the lake, but I couldn’t catch up to my thoughts, which were
racing like mad. I was very upset, so upset that I thought the only way around
it was to be alone. I wrote in my iPhone “Learn to be alone. Learn to take
care of things of yourself. The world is still big.” If not for the file that
is still in my iPhone, staring at me with the 3-year-old date, I would not
remember this episode.
How can I describe the
experience of an overrunning mind and its effects?
It was like your brain has no
brake. Like that noisy scan your computer makes when it tries to locate for a
certain place in a DVD, but it never finds it, it just keeps scanning and
scanning.
Inside, there’s the beauty of
darkness. In this darkness, a millions things happen at the same time: you see
fireworks; your see orchestras; you see dramas and the tender of the night. All
the neurons in your brain fire up simultaneously and they are busy connecting. Like
the movie of the same title, you feel like you are “limitless”. You think you
have “unique insights” about the world. Invariably, what follow the beauty of
this spark are unrealistic thoughts and a non-stop fever. Or simply: mania.
When it ’s two o'clock
in the morning, and you're manic, even the UCLA Medical Center has a
certain appeal. The hospital— ordinarily a cold clotting of
uninteresting buildings— became for me, that fall morning not quite twenty
years ago, a focus of my finely wired, exquisitely alert
nervous system. With vibrissae
twinging, antennae perked, eyes fast-forwarding and fly faceted, I took
in everything around me. I was on the run. Not just on the run but fast
and furious on the run, darting back and forth across the hospital parking lot
trying to use up a boundless, restless, manic energy. I was running fast,
but slowly going mad.
The man I was with, a
colleague from the medical school, had stopped running an hour earlier and was,
he said impatiently, exhausted. This, to a saner mind, would not have
been surprising: the usual distinction between day and night had long since
disappeared for the two of us, and the endless hours of scotch, brawling, and
fallings about in laughter had taken an obvious, if not final, toll.
We should have been sleeping or working, publishing not perishing,
reading journals, writing in charts, or drawing tedious scientific graphs that
no one would read.
Suddenly a police car
pulled up. Even in my less-than- totally-lucid state of mind I could see that
the officer had his hand on his gun as he got out of the car. “What in the hell
are you doing running around the parking lot at this hour?” he asked. A not
unreasonable question. My few remaining islets of judgment reached out to
one another and linked up long enough to conclude that this particular
situation was going to be hard to explain. My colleague, fortunately, was
thinking far better than I was and managed to reach down into some deeply
intuitive part o f his own and the world’s collective unconscious and
said, “We’re both on the faculty in the psychiatry department.’’ The policeman
looked at us, smiled, went back to his squad car, and drove away.
Being professors of
psychiatry explained everything.
(“The Unquiet Mind”, Kay
Jamison, Ph.D.)
Pushing people away
My compulsion to be alone
would eventually lead to my thinking that I *had* to live on a particular
island to get on for the rest of my life.
What hurts my husband the
most was how I was emotionally unavailable to him. My sadness and my anger had
inserted themselves into our marriage like a raging and damaging third party.
I am incredibly sorry that I
made him feel second best and unloved. Part of the reason why I write this is
that I want it to be known that he is utterly and thoroughly loved.
I used to choke up in
embarrassment when I thought of the slightest possibility to be judged by
others. When I let those negative emotions out, I hurt his feelings. I cannot
be more sorry.
I used to tell him that I had
already swallowed a lot of emotions inside. I wasn’t lying. Only I didn’t
realize that my emotions were at abnormal levels and that I wasn’t supposed to
swallow them at all. All swallowing did was bottling them up.
Until it popped. And popped.
Like the devil’s fireworks.
I am sorry.
5 Coping Strategies for loving someone
experiencing depression
by Robin Mohilner - a
licensed psychotherapist in the state of California
(Her info:
https://www.facebook.com/teamTHRIVE/info)
Strategy
#4: Interpreting Rejection
When your loved one is in a
depression rejecting you and pushing you away as best they can. They’re
not saying, “I need you and want more of you.” It would be easy to allow their
rejection to cause you to dive into a depression yourself and feel
heart-broken.
Here’s an alternative
interpretation to their rejection:
“I need to be alone.”
Interpretation: “I need to
escape this by sleeping as much as possible. I can’t escape it as easily if
you’re here talking with me about it. Why don’t you go do something you need to
do for yourself.”
“I’d rather be with my friends [than you].”
Interpretation: “When I’m
with my friends, it distracts me from how horrible I feel. My friends
don’t ask me how I’m feeling. They don’t ask me if anything is wrong. If they
see something is wrong, they wait until I share. If I don’t share, they
don’t ask…they just keep talking about themselves.”
“I don’t know if I want our relationship.”
Interpretation: If your
relationship was in good standing when your loved when went
into the depression…”I’m not myself. I don’t like who I am being. This is not
who I want to be. I don’t want to treat you this way. This feels permanent.
If this is how I will always
treat you. I don’t want to be with you.”
“You don’t make me feel better.”
Interpretation: “You can’t
make me feel better even though you really try to. When I am with you, I still
feel so depressed because I don’t get to pretend to be okay when I’m with you.
When I’m with you I’m stuck feeling whatever I feel and there is nothing you
can do to make me feel better.”
Strategy
#3: Perspective: Depression is in a relationship with the person you love, not
the person you love
Your loved one is not depressed.
Depression is NOT who they are. Your loved one is experiencing
depression.
An angry, joyless, flying mind
As my emotional condition
deteriorated, my Bear and I tried to live as normal as possible.
He and I took on projects at international organizations to support ourselves. We also worked on the side for our dreams.
Actually, for 4 to 5 years
since we’ve gotten married, we supported each other to pursue our dreams. It
was a blissful experience. We often talked about our aspirations and prospects
over dinner. Emails from that time showed we sent each other supportive
messages back and forth.
(I am so sorry I stopped supporting you as a wife. If you remember the times before, remember how we worked together in our living room, how we sent each other stuff to cheer one another on, how I asked you to kiss me every time there was a full moon, so we’d stay together... That was the real me.)
We went out, sometimes
together sometimes separately. People thought we were cute together (we’re a
cute couple).
I went back to my hometown in
another continent once a year.
Email exchanged showed that
we were still pretty sweet 2 years before, but 2 years ago, things decisively
went for the worse.
I became unhappy about
everything.
EVERYTHING.
It was hard to pinpoint
exactly when I couldn’t feel any joy in life. I just gradually became more and
more joyless and restless. No matter what I did to fight depression during my
“up” times; no matter what my Bear did for me, I felt it was not enough,
because I was still depressed.
I complained about the way we
lived, the social life we had, our goals, our future, anything I could think
of.
If my brain was a computer
that was supposed to be able to run a range of emotional programs any brain could
access and feel, at the time, I could only access the “anger” and “sadness”
programs.
It’s like everyone is given
$100 to spend each day. People may gain or lose a bit of money depending on the
happenings of the day, but generally they are supported by a stable income.
Except to me, the $100 felt like $1 million. So when I gained some money, I
felt like I was winning the lottery. When I lost something along the way, I
felt like I had gone bankrupt. Consequently, the decisions I made were very
different from the average person.
Negative thoughts took root
like a viral weed during my long depressive seasons. I could only think of bad
things: how no one liked me; how I needed to be alone.
Trapped in anger and sadness,
I couldn’t feel my Bear’s love. I had a very bleak outlook of our lives. I
thought over and over again that I was dying in the condo one day at a time.
I became convinced that our
marriage was problematic. I regretted incredibly about getting married. I
thought that was the source of all my sorrows.
I was wrong. I am so sorry.
Since I started getting
treatment a few months ago, I heard an incredible story from another bipolar
patient:
She said she once had an
argument with her husband, who came from a different cultural background. The
argument started with the husband accusing her society to be ungrateful to his
people. He said in the last economic crisis 15 years ago, his government had
generously helped her city out financially. The problem was, to the wife’s
knowledge, her city dipped into its own reserve to resolve the economic crisis.
(Some facts: his government
is notorious in misinforming its people while her city allows the free flow of
information.)
So because this husband and
wife had received different information from their own respective societies,
they made different judgment about her city’s people.
A mood disorder affects a
sufferer in a similar way: our brains constantly send and receive erroneous
distress signals, prompting us to make desperate decisions.
When a healthy mind gets sad,
it is distressed for a time but it bounces back. When a healthy mind gets hurt
and angry, it blows up for a while but eventually calms down.
An emotionally imbalanced
mind is a rubber band that has lost its elasticity, a kettle that is ever boiling.
Healthy people often suspect
emotional disorders. From their own experience, a person can control their own
emotions and the emotions usually go away when their times are up.
What if, just what if, there’s bug in the mind and the emotions don’t go
away? What if depression and anger stay for a long time and when they are gone,
you know you can count on it coming back often? What would you do? How would it
affect your thinking?
It’s a strange idea that you
need certain chemical balance in your brain to feel comfortable, have
confidence, feel open, and most of all, feel love. But that was precisely my
experience.
This difference in subjective
experience (I feel sad all the time and you don’t) creates a vast divergence in
judgment of how normal folks view life and how we view life. It is as if we live
inside our own special weather that no one else can see, all the time. Without understanding
how our devastating weather forecasts are induced (i.e., without getting proper
psychiatric and psychological treatment), we take them seriously and do things
normal people don’t do: we hide at home a lot; we go out at strange hours.
Knowledge is power. Without
knowledge about the ways we may get ill, we are vulnerable to even the common
flu.
Haven’t we only learned to
wash our hands in the last two centuries? Before that, no one had any concept
of “germs” for they were invisible to the naked eye.
Bipolar disorder is primarily
a biological disorder that occurs in a specific area of the brain and is due to
the dysfunction of certain neurotransmitters, or chemical messengers, in the
brain. These chemicals may involve neurotransmitters like norepinephrine,
serotonin and probably many others. As a biological disorder, it may lie
dormant and be activated on its own or it may be triggered by external factors
such as psychological stress and social circumstances.
In everyday life, people have
a variety of moods and feelings. These feelings include frustration, joy and
anger. Usually these moods last one day rather than several days. For people
with bipolar disorder, however, moods usually swing from weeks of feeling
overly “high” and irritable to weeks of feeling sad and hopeless with normal
periods in between.
An important distinction
between bipolar disorder and the normal emotions of life is that bipolar
disorder results in an inability to handle daily activities. The person cannot
work or communicate effectively and may have a distorted sense of reality (for
example, unrealistically high or low opinion of one’s skills).
It’s real
These experiences are quite
shameful for me to share. Some might think these emotions are fantastical and
are only pigments of my imagination. Still I want to share, for I don’t wish
our tragic experience to happen to anyone else. I hope family members could get
a glimpse of what bipolar patients go through and be more ready to help the
patient as well as themselves.
Our minds are not as simple
as a plain. It has many contours and concaves. Sometimes we could get stuck in
the shadowy caves of our minds.
Murphy’s law: if anything
could go wrong, it will. Mood is one part of our brain; it could become faulty
too.
The problem is, mood is
encoded in our thoughts and we have only one mind to think. When we don’t
understand how it works, extreme moods can easily be interpreted as mandates
issued from the deep of your own mind.
I truly believe that
understanding how our emotions affect us should be part of our society’s common
language.
The kindness and generosity
of most people was heartening, the vitriol and irrationality from others
disturbing. The subject of mental illness tends to bring out a complex humanity
in people; in others, it hits a deep vein of fear and prejudice. Far more
people than I had realized conceptualize mental illness as a spiritual flaw or
shortcoming in character. Public awareness lags behind the progress in our
clinical and scientific understanding of depression and bipolar illness. It has
been appalling, and at times frightening, to come face-to-face with attitudes
more usually associated with the Middle Ages than with the twenty- first
century.
(“The Unquiet Mind”, Kay
Jamison, Ph.D.)
It’s biological
Last month, in a session with
me and my family, my psychiatrist explained to us that anyone may plunge into
depression for some time in their lives. Sometimes the passing of a loved one
or an unfortunate life event could lead people to a prolonged depressive state.
However, only people with the bipolar gene would exhibit manic signs along with
the depression.
When I think back on my
personal history, I can pick out different moments in my life when I was
affected by extreme moods. I had a pretty carefree childhood. As a kid, I was
introspective, sensitive and always felt a weakness inside. At the same time, I
learnt things effortlessly and had very good grades without trying very hard. I
liked to talk to myself, and I always had a vast imagination (one of the
benefits of having a high-speed running bipolar-wired mind). In primary school,
I had a literally photogenic memory. I could recite whole chapters and could
recall the exact location of each word in each chapter. To prepare for exams, I
developed a learning method of turning each chapter in the textbooks into a
story and pretending I was telling the story to a class. It helped me get close
to full marks and graduated first in class in primary school.
But when I entered secondary
school, I began to stress out socially and academically. I constantly felt
embarrassed by my being. I never knew why. I just did. My grades reflected my
mental strain and slipped steadily downwards over my secondary school years.
Every time there was a big stressful event, like graduation exam, I became so
nervous that I couldn’t bear. I developed a bad, unshakable habit of hiding
from pressure.
I am so sorry my sweet bear
baby.
What I didn’t realize in the
previous 3-4 years of tv watching was that my brain was over-running all the
time. In fact, over time I got more and more irritated. It was not the tv
watching that induced the irritation. In fact, I was using tv watching as the
sedater for my overrun mind.
I didn’t realize until my
psychiatrist confirmed 3 years later (marriage wrecked) that I watched tv back
then to escape from a chronic depression.
Even now, my Bear is
convinced that I never had mood problems. Whatever I did I did because of
character flaws or cultural influences. And because (he thinks) I had never
loved him. I can see how devastated and confused he must feel to come to this hopeless
conclusion.
My “character” would
gradually evolve to be inconceivable, inconsistent, and inexplicably
destructive.
So
what can you do to make your partner an ally in recovery?
The first step, says Parikh,
is education—for both of you.
The more that both partners
know about symptoms, treatments, and coping strategies, the more they can work
together to address common challenges. Reading and online research, workshops
presented by mental health organizations, discussions with mental health
practitioners, and peer support groups are all good ways to get informed.
A partner or spouse who is up
to speed on what it takes to live with bipolar will find it easier to
understand when you ask for support.
The next step is learning to
discuss matters relating to your illness openly and honestly.
For one thing, being able to
share what’s going on in your life and your head provides your partner with a
context for any irritability, sadness or high spirits you exhibit. For another,
it gives you both a touchstone for recognizing early signs of a mood shift.
Elizabeth and her husband,
Rory, who have been married since August 2012, have a conversation at least
once a week about any symptoms Elizabeth might be experiencing.
“Regular communication is
really important,” says Elizabeth, 32, of British Columbia. “We talk about what
I’m feeling and things that he notices about me. Sometimes, it’s hard for me to
see the forest for the trees, especially if I’m not feeling well.”
Rory’s feedback provides her
with a reality check, Elizabeth says.
“Last year I had a manic
episode and Rory realized something was wrong when I told him: ‘I want to go on
a 5K run.’ I’m a pretty sedentary person, so for me that’s out of character. It
gave Rory a clue that I might be experiencing mania,” she recalls.
In most intimate
relationships, it’s important to make significant others aware of red flags,
according to David Miklowitz, PhD, a professor of psychiatry and director of
the Child and Adolescent Mood Disorders Program at the Semel Institute for
Neuroscience and Human Behavior at the University of California–Los Angeles.
“People with bipolar disorder
can make a list of symptoms and behaviors that they know indicate early signs
of a manic or depressive episode. The partners can then refer back to these
lists in order to spot early symptoms,” Miklowitz says.
Asking for a divorce
There was one thing that I
wished happened when we got married. When he proposed, I wish he could have
honestly and assertively said: If you marry me, you would have to stay here
in this continent with me for the rest of your life. But, I promise to visit
your family with you often and treat you well since you choose to live in
another continent with me.
Instead, when I moved to the
NW city for him, we vaguely said he would move once for me too. I asked him if
he would come and get me if I went back to my hometown, he said he would.
If we had been
straightforward from the onset about where to live, that would really have
helped me adapt to our new married life and I would not have felt so emotionally
stuck in between two continents for years.
This is a classic project
management problem: vague requirements in the beginning of the project. This
two-city issue would eventually become a major stress trigger for me.
Trapped in the thinking that
I was dying in the condo and I would never have joy again, I started
fantasizing about living in my hometown in the other continent. As a relief
from my chronic depression, the “manic” side of me started to construct
fantastic dreams about the other city.
I fell in love with the idea
of living between my hometown and our city.
The problem was, I knew my
husband would never move to my hometown with me.
I asked him for a divorce.
I did it in a very calm way.
In my mind, I told myself: it’s very sad, but it has to be done, because I
would die if I don’t move back but you wouldn’t move with me.
Looking back, I understand
that I made a bad assumption that many sufferers of mood disorder make: that
the depression would never go away unless you do something drastic.
As such, I hurt my Bear tremendously.
The first rule of Fight Club:
you never talk about Fight Club.
(Movie “Fight Club”)
First rule about mood
disorders: Don’t make decisions when you are emotional
(My psychiatrist)
---
During this same period of increasingly feverish behavior at work, my marriage was falling apart. I separated from my husband, ostensibly because I wanted children and he didn’t — which was true and important— but it was far more complicated than that. I was increasingly restless, irritable, and 1 craved excitement; all of a sudden, I found myself rebelling against the very things I most loved about my husband: his kindness, stability, warmth , and love. I impulsively reached out for a new life. I found an exceedingly modern apartment in Santa Monica, although I hated modern architecture; I bought modern Finnish furniture, although I loved warm and old -fashioned things. Everything I acquired was cool, modern , angular, and, I suppose, strangely
soothing and relatively uninvasive of my increasingly chaotic mind and jangled senses. The re was, at least, a spectacular— and spectacularly expensive— view o f the ocean. Spending a lot of money that you don’t have— or, as the form all diagnostic criteria so quaintly put it, “engaging in unrestrained buying sprees”— is a classic part of mania.
(Kay Jamison - An Unquiet Mind)
---
Know
That You Can't Tackle This Alone. People Who Are Depressed Have A Medical
Condition: Before
I get into telling you how to handle the request for a divorce, I first want to
stress that no matter how much you love your husband, unless you are a medical
professional who deals with depression, you can not and should not handle this
alone. Most people who are severely depressed need medical help. This is a
disease just like diabetes or cancer. It's no one's fault, but it can be
managed...
http://www.articlesbase.com/breakup-articles/my-husband-is-depressed-and-wants-to-leave-me-or-get-a-divorce-2939036.html
http://www.articlesbase.com/breakup-articles/my-husband-is-depressed-and-wants-to-leave-me-or-get-a-divorce-2939036.html
Ever Changing Decisions & the
Ugly Truth about Negative Thinking
My Bear was distraught that I
asked for a divorce, but because he loved me, he thought he would do what I
thought was best for me. He treated me with nothing but respect. He was that
kind and pure.
He didn’t know that I didn’t
know what I was doing at all. I talked absolute terms: must, should, have to,
forever... but I didn’t have the ability to think things through.
Try not to express your
feelings in absolute terms like “must”, “should”, “forever”…
Instead, try expressing your
feelings in terms how you feel. Start your sentence with “I feel...”
(My psychologist)
After asking for a divorce,
for some time I thought the madness in my mind would stop. During Christmas, I
went to New York by myself instead of visiting his family. Sad and left alone, my
husband had to make excuses for me to his family.
In the meanwhile, I turned
away from everyone in the world, while trying to stop my over-speeding mind.
One night alone in New York, after starving and drinking some caffeinated sofa,
my minds flew: I came up with a dozen of ideas for the future, including being
a manager to new stars - I had nothing whatever to do with the media industry -
I was that crazy. Of course, all of those ideas seemed very sensible to me.
I didn’t know that I was
going out of my mind at the time. After years of accumulation, my disorder
finally became “pathological”, as my psychiatrist said.
After I came back from New
York, the pressure of getting divorce started to mount. I couldn’t figure out
exactly why we had to be divorced. I became very lost about what I
should do after getting a divorce (managing stars?)
Like a maniac, I asked my
husband for reconciliation. Should we cancel the divorce? I asked him
sheepishly.
I was not coherent or
sensible from this point on. For over a year, my mind was flying as high as a
kite, dragging my depressed body along in the dark, deep, manless waters.
Two or three toxic thoughts kept cycling in my mind:
1). Divorce
In my
mind, divorce = going back to my hometown = a way out of my depression =
separation from my husband = imminent sadness
2). Staying in our original
city
In my
mind that = wildering and death =continued depression = unbearable
3). Dark thoughts
My head cycled between these
few thoughts uncontrollably like a halting computer. I couldn’t think of
anything else; I couldn’t see 3 inches ahead.
Bipolar wife wants a divorce
Bipolar wife wants a divorce
She's threatened to
leave before, but has never really done it. She usually changes her mind after
about a day. To make an example, 4 days ago she said we'd be together forever.
2 days ago she said that she wants a divorce.
---
It can be tough to tell if you’re making a
decision based on your wise mind or your emotion mind, because, as Van Dijk
writes, both include emotions.
She suggests assessing the strength of your
emotion. If your emotion is intense or overwhelming, you’re likely in emotion
mind. If it’s not overpowering, you’re likely in wise mind.
Also, making a decision from your wise mind
means sitting with it. If you find yourself vacillating, you’re probably
letting emotion mind take over. That just means that you need to give yourself
more time.
Dark thoughts
Close to being divorced, I
didn’t know what to do. I kneeled down in the workroom and begged the gods to
help me reconcile with my husband; to help me be normal and loving enough to
take care of myself and him.
Writings from that period
showed that I thought of asking his dad and his brother for help.
My Bear was still forgiving.
Reluctantly, he agreed to reconcile. Nonetheless, he was destroyed. His health
began to weaken and he was very stressed out.
He is truly a superman. He
was taking care of a person with a mood disorder and he didn’t know it. I am so
sorry for all the hurt I brought to my Bear.
I looked healthy, even
dangerously radiant. I spoke clearly, in fact, I spoke a lot, often nonstop -
although what I said really didn’t make much sense.
We made up. We had a brief
spring. I tried to be a better communicator. I set talking rules with him. Then
the summer storms came and I broke all the rules.
I was truly wretched.
Because I still couldn’t
figure out how to slow down my mind and stop the depression, dark thoughts came
to me for the first time.
I stopped going on Facebook.
I didn’t want to tell any of my friends about divorce or other problems.
At this point, I pushed
everyone away. Everyone: my husband, my family, his family, my friends, our
friends.
However, fear is often the
reason for not seeing a doctor.... -- even though relationships
and careers can be at stake.
If you're concerned about a
loved one who could have bipolar disorder, talk to him or her about seeing a
doctor. Sometimes, simply suggesting a health checkup is the best approach.
With other people, it's best to be direct about your concern regarding a mood
disorder. Include these points in the discussion:
·
It's
not your fault. You
have not caused this disorder. Genetics and stressful life events put people at
greater vulnerability for bipolar disorder.
·
Millions
of Americans have bipolar disorder. It can develop at any point in a person's life -- though it
usually develops in young adulthood -- and is responsible for enormous
suffering.
·
Bipolar
disorder is a real disease.
Just like heart disease or diabetes, it requires medical treatment.
·
There's
a medical explanation for bipolar disorder. Disruptions in brain chemistry and nerve cell pathways are
involved. The brain circuits -- those that control emotion -- are not working
the way they should. Because of this, people experience certain moods more
intensely, for longer periods of time, and more frequently.
·
Good
treatments are available.
These treatments have been tested and found to be effective for many, many
people with bipolar disorder. Medications
can help stabilize your moods. Through therapy, you can discuss feelings,
thoughts, and behaviors that cause problems in your social and work life. You
can learn how to master these so you can function better and live a more
satisfying life.
·
By
not getting treatment, you risk having worse mood swings -- and even becoming suicidal. You risk damaging your relationships with
friends and family. You could put your job at risk. And your long-term physical
health can also be affected, since emotional disturbances affect other systems
in the body. This is very serious.
Trust is crucial in shaking
someone's denial, in motivating him or her to get help. Trust is also important
once treatment for bipolar disorder starts. Through the eyes of a trustworthy
friend or family member, a person with bipolar disorder can know when treatment
is working -- when things are getting better, and when they're not. If your
interest is sincere, you can be of great help to your friend or family member.
Secretly I started to write
suicide notes. I looked up places to hide and die. In this mac that I am using
to write my story now, I have a file that was dated in April 23 of last year.
It’s titled “To Police”.
I don’t wish to garner any
sympathy or spread any morbid thinking. I am only sharing this to share my
personal tragedy and to hopefully raise awareness to the destructive sides of
mood disorders. Unfortunately, they are all too real to the people who
experience it. Despite this fact, suicides or suicidal thoughts are often a
taboo in families and in societies and they are not openly discussed. I think
as a society, we have a responsibility to talk about these very real issues so
people who experience it could get prompt help.
One year ago, I really needed
medical support. Unfortunately, neither my husband nor I had the knowledge or
understanding about mood disorders to seek professional aid.
As a consequence, both my
husband and I were rubbed of the protection of modern medicine. Due to
ignorance, we were denied of a basic human right in an advanced society: the
right to health care.
Can you believe it? We both
have postgraduate degrees; we were living in a city that invented some of the
most advanced technologies for the 21st century; we had access to one of the
best medical systems around the globe, and yet, because our understanding of
the mind was still primitive, we were susceptible to its faults and let them
affect us in the most hurtful ways.
My Bear is right: I can’t
blame it all on the illness.
Ignoring it altogether had a
price though. Have you ever wondered why Mike “had to” throw out Kate? Why Kate
resorted to being homeless? What if her real problems were not drugs, but
moods? They were just like us: professionals, cat-owners, worked from home.
Have you wondered about the price of being free?
And we were so free.
Familially, occupationally, financially. The unbearable lightness of being.
Freedom has a price, and it is: not knowing what one should do next.
I entered a rapid cycle of
manic-depression. If my ups and downs used to last a month to a few months,
they came and went every few days or even every day.
I started compulsively
discussing the problems in our lives.
Every few days, I tried to
discuss how we should work on our future.
I dreamt up charts, tables,
checklists. All to be filled out and discussed.
During the process, I discovered that you thought our lives were fine as they were. There was no need for any change and for any thinking to be done about the future.
Your future is to be led by you and my future by me, I learned. Other than sharing the condo, there was no plan for our future together.
I freaked out and got very angry. I went on and on and on about what we had done wrong. My speech was high-speed, my language was crystal-clear, but my thoughts were as muddy as the grass field after heavy rain.
Bear was upset that I
attacked our marriage in many ways, but was still very patient with me in
finding a solution. I can only imagine the psychological pressure he underwent.
What eluded both of us was:
why I had the intelligence of a grown-up professional with an advanced degree,
but the emotional maturity of a distressed child.
I was like our cat in the
box, on its way to the vet. Terrified of the prospect of being sent to the vet
but unable to stop us from transporting him, he could only express his distress
by pooping in the box and meowing violently.
If he got a chance to, he
would claw us without thinking and escape into the streets just to avoid going
to the vet.
He didn’t mean to hurt us,
anger us, or run from us, and yet he felt compelled to cry and run away.
In order words, his lizard
brain was turned on.
I was just like our big cat
since a year or so ago. I felt like our marriage was making us “go to the vet”
(although that was not real), and I felt like I had to resist with all the
might of my life.
Speaking assertively, the
marriage has always been very scary to me. I had to stay in another country,
away from my culture and family. To a person with a fragile mind like mine, it
was quite stressful. Not that I cannot be successful in that culture or I
cannot get adjusted. In fact, we were living a pretty normal life there - with
jobs and friends and things to do. But the mental instability and ambiguous
common goals for the future had always been a huge pressure point for me,
especially when I hadn’t fully been independently single before I got married.
While staying with my Bear was a good feature welcomed by my Bear in the early
years. Eventually, the unclear foundation of our union became a major trigger
for my emotional ups and downs and pushed my Bear away from me.
My husband could see that I
was unreasonable and unrealistic, but I argued with him. I made myself sound
very sensible, but if you really listened, you could hear madness.
With my sense of reality
gone, my humanity also went out of the window. It is the most shameful thing to
admit but it was true. I became unable to empathize with my Bear or see anyone
else’s point of view. Anyone sane person could see that I was chasing a ghost -
anyone except me. My sane and awake Bear, still keeping guard for my interests
and our common interests, had to witness this steady deterioration of my
humanity. He kept reminding us what we had: our support for each other; our
common language in the industry, his support for my work, our castle that was
the condo, the exhibit of our love that was the cats... It was most cruel to
him that for over a year he was all alone in safeguarding our bond. I just
couldn’t hear him. I was not just him, I couldn’t hear anyone. I couldn’t
comprehend a thing. My mind was gone. Where? In my mind. My mind had gone in my
mind had gone in my mind had gone in my mind... 3 toxic thoughts cycled.
I still have the remnants of
those days: endless parade of comparison charts, chronological tables,
analytical reports. All to prove that we made the wrong choices all along and
the red sirens were running.
It is painful now to read
through all the “analysis” we went through.
My psychologist said I was
using “over-planning” to try to control my emotional turmoil inside.
My Bear, mad but still
patient and respectful to me, worked with me on all of those.
What a sensitive and loving
person. He was superhuman.
But he was getting stressed
out too. He was lost as I was. The only difference was that he was sane and I
was not.
When I travelled back once to
my hometown, my depression only got worse. I felt I was living in a suitcase. I
imagined dying curled up in our large suitcase (which is lying right next to me
as I type this). I moved all my money to one account. Just in case.
A month later I went back to
our city, and went back to bed to watch tv: I watched whole seasons of Downton
Abbey (became very agitated when Season 2 hadn’t come out on DVD), the whole 7
or 8 seasons of Grey’s Anatomy, all seasons of Dr. Who and countless other
shows that I couldn’t remember. My depression became acute.
If only we knew not to accept
odd behaviors as normal, not to accept outbursts of emotions as acceptable, we
could have had a chance.
Those suffering from bipolar
disorder can also say and do very hurtful things that will seem like a personal
attack - something you don't experience with a traditional illness. This may be
the most difficult aspect to handle, and you must come to understand and be
able to separate the behavior of the disease from the person you love.
...please remember the most
important thing of all - the person you love is still there, still loving you,
and will always regret the painful things he or she says and does during an
episode. Fortunately, with proper medication and counseling, episodes can be
few and far between.
Mood disorder and self-identity
All your life you think you
are a good person.
You see injustice and you
think: those people should be punished.
You firmly believe in “siding
with the eggshell”.
Your world was neatly black
and white and it was splendidly romantic like a Cartier-Bresson picture.
You love your cats. You love
all animals.
You love your husband and
think of him as another animal just like you.
You believe in the world
village. You believe any people in the world should have the right to
self-govern if they really want to. It only makes too much sense. You support
Kiva, borrowing money so people in poor countries can self-sustain. What a
beautiful idea.
You care about the
environment (a little too strongly). You argued with your husband about the
serious impact of plastic bags on our planet. You were adamant. You don’t
understand why people don’t think about the longevity of plastic (50 years!) or
the importance of reducing their carbon footprints in our day-to-day activities.
Your husband dislikes you for getting so worked up.
You listen to NPR. You are
abreast with all the humane issues facing our society and humankind in general.
You adore Stephen Pinker. You
believe in evolution and the progression of human as a race.
You volunteer all over town. You
make jokes about how there were more volunteers than people being helped in a
volunteer event. You poke fun at first world problems, feeling very smart.
You cried after watching
“March of the Penguin” - you couldn’t bear how the polar bears exhaust
themselves swimming but couldn’t reach the safe shore of an iceberg (you still
do). Secretly you regarded protecting the environment as the single most
important deed that you and humankind should band together to work on.
You wouldn’t eat meat. You
believe in these day and age you can get nutrients elsewhere, hence it’s really
unnecessary to consume animal meat as a source of protein.
You love literature, films,
and all forms of art. Walking in a museum calms you down.
You once had a beautiful
heart. You once had purity of thoughts. You once had a relatively healthy mind.
Once you were starting off
new lives with a nice boy you fell in love with, just like everyone else. Once
you were regarded as the polite and shy girl that you were instead of someone
who hurts, or worse: someone not worth talking to, reasoning with.
Sometimes your mind runs so
fast that you feel limitless. You get insights into the very existence of
being. You connect past, present and future in a neat thought.
You hear about people hurting
other people. You can’t comprehend it: how can they be so cruel?
Until one day you push away the
dearest person in your whole life and in the whole wide world; you hurt the one
person you love other than your own family, and the tragedy is: you wouldn’t
even realize it until it is all too late.
You think: Who am I? Am I
real? Was I real? Where does my disorder start and my free will end? Later,
you’d wonder where does the pill start and your free will end. Pill and free
will, are they the same thing?
The moods had taken hold of
you for so long you are not sure if you’ve had them all your life. Your sense
of self is trashed. Your identity destroyed.
Psychiatry. 2008
Summer;71(2):123-33. doi: 10.1521/psyc.2008.71.2.123.
"I
actually don't know who I am": the impact of bipolar disorder on the
development of self.
Inder ML, Crowe MT, Moor S,
Luty SE, Carter JD, Joyce PR. Source Department of Psychological Medicine,
University of Otago Christchurch, Christchurch, New Zealand.
maree.inder@otago.ac.nz
Abstract
The majority of patients with
bipolar disorder have onset prior to twenty years with early onset associated
with increased impairment. Despite this, little attention has been given to the
psychosocial developmental impact of this disorder. This qualitative study
explored the impact of having bipolar disorder on the development of a sense of
self and identity. Key findings from this qualitative study identified that for
these participants, bipolar disorder had a significant impact in the area of
self and identity development. Bipolar disorder created experiences of
confusion, contradiction, and self doubt which made it difficult for these
participants to establish continuity in their sense of self. Their lives were
characterized by disruption and discontinuity and by external definitions of
self based on their illness. Developing a more integrated self and identity was
deemed possible through self-acceptance and incorporating different aspects of
themselves. These findings would suggest that it is critical to view bipolar
disorder within a psychosocial developmental framework and consider the impact
on the development of self and identity. A focus on the specific areas of
impact and targeting interventions that facilitate acceptance and integration
thus promoting self and identity development would be recommended.
---
What then, after the
medications, psychiatrist, despair, depression, and overdose? All those
incredible feelings to sort through. Who is being too polite to say what? Who
knows what? What did I do? Why? And most hauntingly, when will it happen again?
Then, too, are the bitter reminders—medicine to take, resent, forget, take,
resent, and forget, but always to take. Credit cards revoked, bounced checks to
cover, explanations due at work, apologies to make, intermittent memories (what
did I do?), friendships gone or drained, a ruined marriage. And always, when
will it happen again? Which of my feelings are real? Which of the me’s is me?
The wild, impulsive, chaotic, energetic, and crazy one? Or the shy, withdrawn,
desperate, suicidal, doomed, and tired one? Probably a bit of both, hopefully
much that is neither. Virginia Woolf, in her dives and climbs, said it all:
“How far do our feelings take their colour from the dive underground? I mean,
what is the reality of any feeling?”
(“The Unquiet Mind”, Kay
Jamison, Ph.D.)
The Invisible Enemy & Feeling
Cheated
We kept solving the marriage,
never seeing who our enemy really was.
For sure we had problems that
we needed to solve as a couple. All married couples do.
My emotional modulations were
presented (by me) and interpreted (by us) as my dissatisfactions for the
marriage.
We made a big erroneous
assumption: that I had a healthy emotional mind.
We thought: Y = Z. Never
suspecting that X + Y = Z.
My husband went to his family
for help. We are indebted to his dad and his brother for their well-meaning
advice.
Not knowing the history of my
condition and thinking that I was clear-minded about moving to my hometown,
they advised my Bear to go with me as a last resort to save our marriage.
That would later prove to be
a detrimental decision, but none of us knew at the time. No one knew that I had
developed bipolar, and that my conditions would severely worsen with the stress
of the move.
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height="315"
src="http://www.youtube.com/embed/lsvxbHeNnk0?list=PLBRAp8oeo-IumcThg1AJC2wQGKPLCzkuy"
frameborder="0" allowfullscreen></iframe>
---
·
Trust
their feelings. Get help. Be there. Set goals. Don’t take it personally.
·
Don’t
let them be. Don’t do stuff for them. Don’t scold and accuse. Most importantly,
don’t give them up.
·
Do:
Set goals with the patients. Be patient.
(Advice for family of mental
illnesses from a seminar)
Later (now) my husband would
be convinced that I had manipulated him with my emotions. (I am so sorry.)
It’s conceivable that he felt
this way. Over time, my emotions became black holes that refused to be filled.
Knowing what I know now, I cannot bear the kind of hurt my emotional ups and
downs had given my Bear. Another devastating riddle about this disorder is that
in it, the Oppressor is also the Oppressed. It’s a story where the victim and
the bad guy are the same person. Needless to say, it leads to tragedy.
Once I had a chance of
normalcy. Now I, like my beloved husband, feel cheated that my emotions had
manipulated us for so long.
After months of treatment,
the sinister spell that my emotions had cast on me like the bitter work of a
black witch was finally lifting, leaving me barenaked. I found myself having to
relearn everything from scratch: breathe, walk, speak, think.
I am unspeakably ashamed now.
At the time, I was utterly convinced. I am so utterly sorry for what I did to
my Bear and his family.
Some sobering statistics: Depression has a much greater impact on marital life than rheumatoid
arthritis or cardiac disease. Ninety percent of marriages where one person is bipolar ends in divorce. Persons diagnosed with
bipolar disorder have three times the rate of divorce as the general public,
which is about 50 percent.
This is all to communicate this message: marriages in which
one person suffers from depression or bipolar disorder can be extremely
fragile.
I know, because I’m in one.
Here are six tips that have helped us and other couples I
know defy the statistics.
1. Cut Through the Crap
If you are married to someone who is in denial, you have
quite a job ahead of you. “I’m not crazy.” “There is nothing wrong with me.” “I
am not taking meds.” These statements do little to move your marriage into the
happy zone. In her book, “When Someone You Love Is Bipolar,” psychologist Cynthia Last, Ph.D. dedicates a
chapter to the subject of denial and what you can do. She suggests giving your
partner a book that he can relate to and providing literature on the topic.
You could also try a scientific approach and provide some
evidence in the form of feedback from his friends and family, a list of
compelling symptoms (embarrassing photos are great), or a rundown of the
disorder in his family. He could balk at that, and tell you that you dress like
his mother for even implying such things; however, you’ve done your job to try
to educate, and that’s really all you can
do.
2. Find the Right Doctor
I consider shopping for the right doctor much like buying
your first house. Many components need to go into the decision — it’s not
enough to like the bathroom tiles and the bedroom closet — and some bickering
is to be expected. If you rush the decision, you might wind up living in a
house that you hate for a long time except for the great bathroom tiles. Good
doctors save marriages. Bad doctors destroy them. Good doctors help you get
better. Bad doctors worsen your condition.
If your partner is bipolar, this is especially important
because the average patient with bipolar disorder takes approximately 10 years
to get a proper diagnosis. About 56 percent are first diagnosed with unipolar
depression. I know this topic well. I went through seven doctors and a ton of
diagnoses before I found the right fit. She saved my life and my marria
3. Enter into a Triangle Relationship
In any other situation, I hate threesomes. Someone always
gets left out and people play dirty — at least they do at my daughter’s play
dates. But for marriages that involve illnesses such as depression or bipolar,
a triangle relationship with a doctor or mental health professional is
essential. It keeps your partner honest, or at least required to unfudge the
truth. He reports:“ Feeling perfect. Meds really kicking in. All is going
better than it ever has.” Then wifey comes in and spills the beans. “He has
been curled up on the couch in tears for the last two weeks, not taking calls
from any friends and skipping important meetings at work.”
The triangle relationship also allows you some education
about his condition. For example, you might not be aware of what a hypomanic
episode looks like until you hear the doctor describe it. In some cases a
mutual understanding of symptoms is enough for a couple to avert a full-blown manic or depressive episode because together you can
take steps to change the course.
4. Abide by Some Rules
My husband and I have several rules: I call the doctor after
three days of incessant crying or nosleep.
I tell him when I’m suicidal. He stays with me when I’m a danger to myself.
However, the most important rule is this: I have promised him that I will take
my meds. It’s like how Jack Nicholson told Helen Hunt in the movie “As Good As
It Gets” that she makes him want to take his meds, she “makes him want to be a
better man.” The truth is that many marriages get stuck on this one.
Without a doubt, the biggest challenge we face in treating
bipolar disorder is medical adherence, according to psychologist Kay Redfield
Jamison. “I’d like to make the obvious point that I don’t think is made enough,
which is that it doesn’t do any good to have effective medications for an illness if people don’t take them,” she
said at the Johns Hopkins 21st Annual Mood Disorders Symposium. Approximately
40 – 45 percent of bipolar patients do not take their medications as
prescribed. Come up with some rules, and be sure to include in there
“medication adherence.
5. Learn the Language of the Illness
Sometimes I forget how hurtful my words can be when I’m
expressing how anxious or depressed I feel. “I just want to be dead.” “I don’t
care about anything.” “If only I was diagnosed with cancer and could make a
graceful exodus out of this world …” Oh, no offense. Thankfully my husband
knows that it’s my depression speaking, not me. He has been able to separate
his wife from the illness. That is the result of lots of research on his part
and a few conversations with my psychiatrist
6. Keep Yourself Sane
Spouses of persons with depression and bipolar unwittingly
become caretakers for major chunks of time. And caretakers are at high risk for
depression and anxiety. Researchers at Yale University School of Medicine have
found that nearly one-third of caregivers who are nursing terminally ill loved
ones at home suffer from depression. A study in Great Britain found that one in
four family caregivers meets the clinical criteria for anxiety.
Pay attention to these symptoms: feeling tired and burned out
much of the time; physical signs of stress such as headaches and nausea;
irritability; feeling down, deflated, reduced; changes in sleep or appetite;
resentment toward your spouse; decreased intimacy in your relationship.
Remember that if you don’t secure your oxygen mask first, no one gets air. If
my husband didn’t take time to run and play golf he would be hospitalized
alongside me.
http://psychcentral.com/blog/archives/2013/05/13/being-married-to-a-person-with-depression-bipolar-6-survival-tips/
Big Change & Leaving
One day in the midst of all
the arguments, I got an email. It was a call to interview for a position in my
hometown.
The pay was crappy. My
husband didn’t want to move. We were having so much trouble between us. It was
crazy to take the job.
In my messy mind though, I
could only think: this is the chance. I can finally go to my hometown. My
husband and I would have my salary to live on, and I can stay on the island of
my dream; he’d be working on his own projects; I’d work to cover for us. We’ll
go to the beach. We’ll go clubbing in town. This is perfect.
That would prove to be the
final blow.
I had another massive manic
episode - crying and yelling to get him to come to my hometown with me. He saw
all the holes in the plan; I didn’t. Still trying to save our marriage, my
husband agreed to move to my hometown with me for one year.
To save expenses, we rented
condo to our neighbors and got someone to take care of our cats.
My husband was really unhappy
about moving to my hometown. He could see the consequences that while I was
feverishly trying to move. His parents objected, but I didn’t listen to them. I
didn’t tell my parents about our problems, so they thought we were really
trying to live in my hometown for a year.
I am so sorry to everyone for
everything. I cannot be more ashamed.
Like I said, I was just doing
one thing or another right in front of me at this point. I had the foresight of
a cockroach. I couldn’t see even 10 minutes ahead. All I wanted to do was to
move to the island of my dream and that would be the end of all of our
problems.
The island of my dream is 25
minutes of ferry ride away from my hometown. I’ve been there once with my mom a
few years back. I felt tranquil and happy that day. That was how it became my
ultimate dream of peace and happiness.
I gave him all kind of
reasons that we should move there: everything would be fine. We will have
exciting city life, enjoy the country life of the island, swim, and work
whatever we wanted. To “convince” him, I threatened divorce again in a public
park.
Why couldn’t I see the ugly
things I was doing? Why didn’t I sense the nightmare that I had created?
Bipolar individuals are not only more likely to
set unrealistic goals, they can also be severely affected emotionally when
their goals are not met.
"We find that they have problems with
regulating goals, setting ambitions too high and becoming overconfident,"
Johnson said.
After establishing these triggers, the study
outlines a therapeutic treatment to combat them, which researchers named the
GOALS program.
Johnson, who conducted research on bipolar
disorder for 13 years at the University of Miami, worked with Fulford to
develop the educational program, which seeks to help people recognize and
control early symptoms of a manic episode.
In Miami, the pair tried out the program on 23
volunteers with bipolar disorder, helping them design reasonable plans to
achieve their goals.
"We teach them skills for when they're
becoming a little too confident or too goal-oriented and ways to calm their
moods," Johnson said.
The process of moving to the
island was excruciating for my husband. He had to quit his contract job,
dispose extra furniture in our condo for our renters to move in, and shipped
stuff to my hometown for me.
In the meanwhile, the move
was literally nerve-racking for me too. I found that working in my hometown is
stressful and downgrading to professionals like us (as my husband forewarned).
I had to work long hours and face distrustful clients who didn’t understand our
line of work.
Stress, big changes, time
zone difference, lack of sleep, dire consequences after reckless decisions... textbook
triggers for bipolar disorder, happened to me all at the same time. The first
day I started working in my hometown, I had trouble even forming a sentence. I
thought my memory was going, but I hid my problems still.
I wouldn’t relent. I rented a
place on the island and the Bear and I moved in.
I picked fights with him
every night. I cried daily. Inside, dying appeared constantly on my mind. Out
of control, I expressed all the anger and depression I felt outwardly.
I abused his love. It’s hard
to admit, but I did.
I cried so much that my Bear
said: “I am immune to your tears.” (That was a sign! A symptom! How come
we didn’t know???)
At this stage, my manic-depressive
could cycle several times a day. There were no distinct states of mania or
depression anymore. It was all mixed together into a horrific storm that came
back day after day.
The day we moved into the
island, we bumped into my old friends from secondary school. Still avoiding my
friends, I said I would call them back, but I never did.
Instead, tears came out of my
eyes uncontrollably and publicly in an outdoor restaurant. I said to my Bear,
resolutely: “I would never see my friends again. I would live on this island
till the day I die”.
I brought him to the island’s
beach at night. Those were the only rare moments when I felt peace those days.
On some rocks out in the water, I thanked my Bear for coming to see my island.
Still we fought. I started
hitting myself.
My knuckles turned reddish
brown from hitting myself. My brother noticed them. I told him they were from
working out.
As soon as the bruises
healed, I got hysterical again and the brown knuckles came back.
It was not just my husband. I
couldn’t stand being with my family or his family. I remember getting very
agitated when my parents continuously talked about the foods and dishes we were
having at night.
“How mundane”, thought
I. My inside was boiling with impatience.
After a dinner with my Bear’s
parents one night, I ran to a public bathroom and cried.
He repeated said to me, in
desperation: “I thought moving to your hometown would make you feel better.
Instead, you got worse.”
“She would never change",
he eventually said to my mom. But I did change. I changed for the worse. I was
steadily getting worse. Wasn’t that obvious enough?
How loud does a scream have to be before it is heard?
I can sum up the nature of
bipolar disorder in three words: chronic, complex, and confusing; in two words:
burdensome and bothersome. Or, if you want just one word: angry.
If you deal with bipolar
disorder, you’ve probably dealt with anger as I have. (You may be dealing with
it right now.) Facing such a disorder provides plenty of opportunities for anger
to manifest itself. How you confront anger does impact the course your recovery
takes and the quality of your life in general...
When anger is out of control,
it can lead to clouded thoughts and impulsive actions. It can even result in
aggressive behavior directed toward someone or something else. In addition,
when you fail to confront anger constructively, others may see you as
communicating destructive ideas, such as avoidance or contempt.
---
I know exactly how you feel
my son has bipolar and yes when in a manic state comes out with some strange things
also rude and aggressive words and they do know what they are saying but cant
help it it is in some cases part of the illness. And they are genuine when they
say sorry I heard my son tell the Dr over and over again he doesn't want to be
like this it was really sad.
What I don’t understand to this day is why my husband still thought I was mentally healthy.
Maybe he trusted me too much.
Maybe he trusted my abilities to help myself.
He told me: the problems
came from you. You have to get better first before we can tackle our problems.
In the last month before he left, he sent an email to me asking me to be a
“resilient partner”. Back then I couldn’t understand a thing he said. I just
kept on meowing and crapping, kicking and screaming, panicking and depressing.
He was, of course, right on
the spot. The problem came from me. Only at that point he or I alone couldn’t
fix the problem in me. We needed medicine. I got too sick. My cold had turned
into pneumonia. My body had become too susceptible to any external pressure. I
needed antibiotics and other drugs to strengthen my body first, before I can
properly love and support him.
Mood disorder or
manic-depressions never ever entered our conversations.
Last night I bumped into my
high school friend of a long time. Let’s call her Joey. I’ve been avoiding my
old friends to this point because I am stilling figuring out what happened to
us. Joey actually knew that I was back to the hometown but she respected my
privacy. After pretending not to see each other for a few minutes, I went up
and said hi. I told her about my conditions.
Surprisingly, she said she
knew about bipolar disorder. One of her good friends had it. They were
classmates and came back to our hometown from yet another continent at the same
time. A lot of tragedies happened in her friend’s family, and her friend
started to yell at Joey every time they saw each other. Her friend would get
very angry and upset and even threatened Joey once. Unlike my Bear, who
sincerely thought I was upset about our marriage the whole time, Joey went
online to look up what could be wrong with her friend. She found that bipolar
disorder fitted a lot of her friend’s behaviors. Trying to help, Joey brought
her friend to see a local mood disorder specialist, accompanied her to relevant
seminars, and eventually helped her friend to get better.
Joey could even explain to me
how the lack of serotonin affects a person: the human brain is like a
glass, she said, the brain of a mood disorder patient is either always empty or
full in emotions, disturbing their thoughts and behaviors. Their emotions would
need to return to normal range to function properly.
The illness is not
everything. The illness is not 100% the cause. But as in anything else, how we
handled the problem made a great deal of difference. Unfortunately, sometimes
our brain needs a reboot and fixing before it could go on loving and
cherishing.
How come we know to go to the
doctor and get medicine when we have a cold, but we don’t think we need to go
to the doctors when we have a serious mood disorder?
When you are diagnosed with
cancer, you call your family, you call your friends, you know you talk to your
employer, and you know you get flowers you get sympathy and everyone is running
around you rooting for you. Uh... unfortunately when you are diagnosed with
mental illness which is also a life-threatening illness, you don’t get that. You
don’t get flowers. You don’t get your employers to say
um... we understand, we’ll
scheduled your time depending on your treatment. Uh... you don't get choruses patting
you on the back, giving you a hug and saying we understand we are here for you.
What you can get, and many have gone is
okay, silence.
… I think it's really
important for employers to realize
that what they do really can
affect a person's life.
The hardest thing is I just
want people to see me as me, and not as bipolar me. And that's been hard.
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(“Living with Bipolar
Disorder: Stigma”)
Those days on the island, I
stared at the water as I walked from the ferry everyday. Sinking occupied my
thoughts. I imagined all the ways I could keep myself down in the water,
including the way Virginia Woolf did herself in.
Depression is: you are in the
water and you can see a little bit of light above you far, far away. You know you can never get up to the surface
because you keep sinking down, and you learn to rely on yourself sinking down
(learnt helplessness). So instead of looking up, you look down. You see a
bottomless void, an all-consuming darkness that has no end to it. Because you
have spent the past months and years in depression, you know you can keep
sinking forever. Without knowing a way out (again, meds & treatments!), you
wish to reach straight to the bottom to end the anguish...
That’s what depression feels
like. That’s what drives people to self-destruction.
Bipolar II is a very severe
mood disorder that affects 3-4% of the population. Like Bipolar I it is
genetically transmitted and runs in families. It is first and foremost a
disorder of abnormal neurochemical functioning in the brain; not due to
psychological stressors or character.
Bipolar II has recurring mood
episodes that include: severe depression and hypomanic episodes. Hypomanias are
mood episodes that arise spontaneously (i.e. not triggered by life events).
They can last from a day or two to a week; sometimes longer. During hypomanic
episodes the person feels very up-beat, optimistic, very self-confident, and
experiences a decreased need for sleep. Such episodes are not pathological and
in fact can be experienced as a huge relief from depressions that are so much
of the landscape of bipolar II. However, it is the depressive side of this
disorder that can be devastating.
Recurring depressive episodes
dominate the lives of people with Bipolar II, unless controlled with mood
stabilizing medications. Depressive episodes can last from a few months to a
few years and if sufferers are not treated or are inadequately treated more
than 50% of their lives are spent in severe episodes of depression.
Surprisingly, Bipolar II can have a worse outcome than Bipolar I (unless
appropriately treated). Divorce rates are higher in Bipolar II than in Bipolar
I. The lifetime suicide rate is 19% and serious medical problems are much more
common in Bipolar illness; e.g. twice the death rate from heart attacks
compared with people who do not have mood disorders
On top of the hurtful fights
and the crying, I disappeared twice into the night. At this point, any stress
would stimulate me to hysteria.
One of the major stressful
triggers for me in that period was work. I started getting panic attacks, which
in me manifested as panting heavily. I was petrified to do any work and I had
to bring work back over the weekend. I sat in front the computer for a long
time, staring at the screen. I didn’t know what to do. I panicked. I froze. I
couldn’t breathe. I couldn’t do the most basic thing in my job.
One night in October, I
disappeared for 3 hours from our home on the island after work. My Bear called
and called. He was worried sick. 3 hours later I went home. I never did tell my
Bear where I went: I cried and climbed out into the farthest rock closest to
the sea, and tied my office bag tightly to my left ankle.
I couldn’t do it at the end.
My husband, on top of being
not used to a strange city, was utterly helpless about my behaviors.
He knew that I was experiencing
big troubles, and started to get very depressed himself. He drank. He threw
away all the knives. He asked me to get psychiatric help. In anger, I said: OK! Make an appointment for me.
Why didn’t I listen to him?
His love for me led him to continually tolerate my behaviors when I was
obviously so unwell.
Of course he cared me very
much and respected me and my wishes. He only had the best of intentions -
however in hindsight it had proven to be a choice both unhealthy for him and
for my health. (I can be nothing but sorry that I stopped him from telling my
family. I am sorry I didn’t protect you from my emotions.)
Instead, he was still trying
to help me as much as he could by himself. He was so brave, yet so helpless.
I know I keep saying this over
and over. It’s because the lack of awareness was so destructive to us that I
keep emphasizing this: watch out for the signs, don’t think you can fix it on
your own, get professional help!
With treatment, my husband and
I may still have to suffer from confusion and pain for some time, but our marriage
would not have to be ruined.
The good news is that most people with bipolar disorder can
stabilize their moods with proper treatment, medication, and support—so if your
friend or family member has bipolar disorder, take hope. Furthermore, you can
play a significant role in his or her recovery.
Here are some ways you can help a person with bipolar
disorder:
·
Learn about bipolar disorder. Educate yourself
about bipolar disorder. Learn everything you can about the symptoms and
treatment options. The more you know about bipolar disorder, the better
equipped you’ll be to help your loved one and keep things in perspective.
·
Encourage the person to get help. The sooner bipolar
disorder is treated, the better the prognosis, so urge your friend or family
member to seek professional help right away. Don’t wait to see if the person
will get better without treatment.
·
Be understanding. Let your friend or
family member know that you’re there if he or she needs a sympathetic ear,
encouragement, or assistance with treatment. Remind the person that you care
and that you’ll do whatever you can to help.
·
Be patient. Getting better takes time, even when a
person is committed to treatment. Don’t expect a quick recovery or a permanent
cure. Be patient with the pace of recovery and prepare for setbacks and
challenges. Managing bipolar disorder is a lifelong process.
He never once cried. Until
one night after he had left and thought how much I had betrayed him as a
friend.
I am so sorry I left him
helpless, hopeless and unprotected from my raw emotions.
In the last days on the
island, he bought a book for me. It’s a book written for children about
building self-confidence. He even read it to me on the beach. I was so touched.
I kissed him out of sheer gratitude.
I tried to get better
following the book’s advice. Again I tried to set rules for arguments. They
didn’t work.
My mind was too far-gone. Cross
my heart. My memory was slipping. Anything could trigger my manic-depression.
My mind was, honestly, a mash.
I mentioned divorce daily. I
said plenty of mean things to him. Things people in their healthy mind wouldn’t
say, but in their malicious malfunctioning state would use as weapons to hurt.
He must have felt such
anguish, such solitude.
If I could give my arms and
my legs to undo the hurt, I would in a second.
In between the fights and
yelling, sometimes I would have one or two lucid moments. One night, after a
big tantrum, I disclosed to him: I am scared. I don’t know what to do.
He said he was scared too.
Poor brave man.
Another time when I was
stressed out (because his parents were in town and unhappy about our
situation), I cried in despair. I screamed: This is hell! This is truly
hell. And I can’t get out of it... I was talking about my mind.
But I continued to threaten
him not to tell anyone. I was very mean to him.
I am so shamefully sorry.
One night after threatening
to divorce, we had a temporary truce. He said would go back to the city we
lived while I worked here and figured things out. I asked him to visit me
sometimes. We were actually sweet.
The next day, only a few days
after Christmas, we had a big fight. Fearing that he would never come back, I
asked him to promise to come back to see me after going back to his own
continent. Very soon and very easily my emotions had reached hysterical
heights. For the first time, he had had enough and attacked back, using the
b-word. In utmost anger, I pulled all his stuff from to sad temporary closet into
a luggage case and threw him out of the apartment on the island, asking him to never
come back.
I called him a few minutes
later after I had calmed down, asking him to leave his luggage.
He never turned back.
Misunderstanding and blame
His family, kind and educated
as they are, finally used a cultural reason to explain why I behaved these
ways.
I understand why they think
this way. My behaviors were too horrid and absurd. For over 2 years I was full
of negative energy, and at the critical hour of our marriage breaking down, the
bad energy spread.
I faced a double jeopardy:
because I was from another side of the world, I not only had to leave my family
when I married my Bear, but when I was distressed, my outsider status somehow
became evidence that I was unfit for their culture. I didn’t respect marriage,
they said. I thought Bear’s career was not good enough, they said (although I
complained about EVERYTHING).
I really want to say to them:
Bipolar can happen to anyone,
regardless of cultural background, race, or level of education. I really didn’t
know that I was sick. I followed my feelings. I am sorry to you all.
Both my husband and I should
have had the protection of modern medicine, but we didn’t know our rights at
the time and we missed the chance of getting treatment together.
We missed our chance to heal
together.
Maybe they are scared of my
illness too. Maybe they are ashamed. Maybe they are worried for my husband, or
about offsprings... I don’t know.
Nevertheless, his family did
try to help me until they felt they couldn’t. I am grateful. After my husband
left, his dad suggested that I got psychiatric help. I am indebted to him.
Running around in a strange city
After my Bear left, I stayed
on the island all by myself.
I panted in panic attacks. I
froze. I hid myself on the island during the entire New Year holiday.
All of these were still
hidden from my own family.
My mind was still running
like mad. I opened my Bear’s iPad and turned on a game I had finished the year
before: Zombie vs. Plants.
I played the same rounds over
and over again until it became second nature for me to pick the right plant to
battle the right zombies. Although the effect was temporary, the game kept me
distracted from thinking about suicide and other perils. It was a sad, frightening
extension of my days of watching tv.
Frankly, with all the
pressure and separation, my intelligence was reduced to that of a rat. At this
point I was not a fully functioning human being. All that recycled in my mind
was: What is going on? What am I doing? Why am I here?
I would continue to not know
what was going on until a few days ago when I started writing this story down.
Even now, I am learning about the idiosyncrasies, the absurdities, bipolar has
given us over the years.
Ironically, at the time, I
could still write emails. I wrote to him, to his family, admitting that I had
depression and behaved horribly.
I took on my husband and his
family’s explanation: I was weak. I had low self-esteem. I had dubious morals.
I still didn’t know about
bipolar. There were no other explanations.
My love was resolute about
going.
I wandered in the city I
haven’t lived in for 15 years.
I flowed from place to place,
from one subway station to another. Later in understanding my condition my
psychiatrist would ask me if I had gotten out of at the wrong station. Indeed I
had. I wondered how he knew such a specific thing. I went through big,
air-conditioned malls like a lost ghost. My mind was blank. My eyes were wide
open.
I came to appreciate how mad people
felt. You know those mad people you see on the street. Wandering around. Eyes
fixated. Iris dilated. Zombie-like and soulless.
I was one of them. I
experienced how they feel: their minds are too full. Their thoughts are running
all the time and wouldn’t let them rest. They have a halt CPU between their
ears.
It could happen to any of us.
In a way, we’ve all
underestimated the effects of “moods”. From our cultures or from our
experience, we believe that moods can be controlled by all of us at all times,
as long as the person is willing to. We can understand that people can be
crazy, out of their mind, have hallucinations, hear things… but we can’t
perceive that how healthy-looking people can’t control their moods.
Both are true: his hurts are
true and my misinformed emotions are true.
Thus is the nature of this illness. It creates an odd vortex
where both of our hurtful feelings are true, resulting in a lose-lose
situation. We have lost so much, though we don’t know who stole our cheese.
Untreated Mood Episodes
Studies conducted before the availability of medication for
bipolar disorder suggest that on average untreated mood episodes (of any type)
go on for about 6 months. Looking at specific types of mood episodes, we know
that manic and hypomanic episodes tend to be shorter—lasting days, weeks,
or a few months—than major depressive episodes, which frequently go on for
many months or, in some cases, for a year or more.
Research indicates that bipolar II depressions persist for
longer periods of time than bipolar I depressions, nearly twice as long (1 year
versus 6 months). Also, for both forms of the illness, but particularly
strikingly for bipolar II disorder, the total percentage of time people are
depressed is much higher than the total percentage of time they are manic or
hypo manic (ratios are 3:1 and 37:1 for bipolar I and II, respectively). So if
your loved one has bipolar II disorder, it’s likely that most of the time
he will be fighting depression, not hypomania.
Mixed episodes of bipolar illness, where both mania and
depression exist concurrently, generally last for weeks to several months, but
about one-third of people still have significant symptoms of the mood disturbance
1 year after it has started. And it’s not unusual for a mixed episode
to change into a major depressive episode or, less frequently, a manic one.
(When Someone You Love is Bipolar by Cynthia G. Last, PhD,)
Family Support
Accumulative effects of the
disorder, in combination of bad decision-making, grew like an out-of-control
snowball.
These days I look at the
little tablets (250MG of Quetiapine) I have to take every night and feel very
conflicted about them. If I knew to take them before, I had a chance to stop
the overloading as well as the disconnecting of my mind. I could think
positively, protect my Bear from my hurtful tempers.
We could be happy together.
Two fools in the wood.
Finally a few days after I
threw my husband away. My mind finally slowed down enough to realize that I had
to tell my parents. I texted my husband to tell him that.
Then dreadfully, I told my
mom. She was shocked but calm (if only I had her emotional genes). In fact, my
whole family had been very supportive of me and respectful for Bear’s space.
I was the only person who
couldn’t appreciate all of it.
I was still, like before,
angry and sad. I yelled. I accused.
My husband met with my mom
and said he really respected marriage and really meant to stay with me for the
rest of our lives.
He was sincere about
marriage, yet firmly believed that I never loved him and my behaviors were due
to my dissatisfactions in life. He had decided to go.
My behaviors pushed and
tested the limits of “in sickness and in health, until death do us part”.
So far I have asked for a
divorce, backed out from it, started fights everyday to “fix our marital
problems”, eventually mentioning divorce daily, cried daily, hit myself, and
disappeared a few times to deal with my very, very dark thoughts.
What I never did was
physically leave him. Even when I disappeared into the night, it only lasted a
few hours.
My mom asked him: What if
she changes?
He replied: She would
never change.
This time he was wrong.
Yet this psychology of him at
this point would determine that we never got to heal this wound together.
We met for a brief time
afterwards. I was trying to save the marriage but had simply no tools at hand
to do so.
I promised him that I:
- Will see cognitive behavioral therapist.
Resolve my psychological knots and learn problem-solving skills
- Will think deeply about being together. Will
not get back if I can't participate in our lives or take care of you
- Will evaluate what I can offer to the
relationship
- Will take your advice of being in the moment,
doing something about my life while focusing on one thing at a time
- Will track progress over time and email
progress.
He and I still thought of my
problems in terms of cognition and psychology.
I would soon get a diagnosis,
but by then he had already made up his mind to part ways with me.
Divided we fall.
The difficulty Davis and
Strickland experienced in obtaining an accurate diagnosis is not uncommon due
to the complexity of symptoms that can mimic other disorders...
“It is not unusual for an
individual to first present with some of the symptoms rather than a full-blown
manic episode,” says Husseini K. Manji, MD, FRCPC, a pre-eminent researcher of
bipolar disorder and the global therapeutic head for neuroscience at Janssen
Research & Development, Pharmaceutical Companies of Johnson &
Johnson.
“This can sometimes result in
a diagnosis of depression, attention deficit hyperactivity disorder or anxiety
disorder and it is only over time that the correct diagnosis is reached,” said
Manji, who says the biggest diagnostic challenge is between depression and bipolar
disorder.
When misdiagnosed,
individuals experience the prolonging of both the symptoms and consequences of
the illness.
“This is problematic because
the treatment for depression (often an antidepressant alone) is not the best
treatment for bipolar I or II (which often requires a mood stabilizer and an
antidepressant),” said Manji. “This is one of the reasons why having biomarkers
that can distinguish depression from bipolar II would be immensely important
and beneficial. Research is currently under way.”
The onset of bipolar occurs
when individuals are young. According to the National Alliance on Mental
Illness, those between 15 and 25 are at highest risk for developing the
disorder.
Further, the delay between
the first symptoms and proper diagnosis and treatment is often 10 years.
Davis waited 11 years and
Strickland 20 to receive a proper diagnosis.
Although bipolar is a highly
genetic disorder, Manji says it is important for individuals to learn about the
environmental factors (such as sleep deprivation, severe stress, drug use or
hormonal changes) that they are particularly susceptible to and attempt to
avoid them.
Such factors can trigger
episodes and destabilize the illness.
“There is reason to be
hopeful,” said Manji. “The last decade has truly been a remarkable one for
biomedical research and cutting-edge technologies are revolutionizing the way
we think about, study and approach the development of novel treatments.”
If before our experience in
life was diverged due to the overwhelming emotions I felt inside, at this
point, our lives went separate ways. His leaving was like a big cruise ship
leaving for another shore. Our story became two stories, each had its own
narrative.
My husband believes that it
was my character that caused all these woes in our lives. To him, I have become
the lying bitch that uses emotions to hold him hostage.
In another continent, I just
discovered that I have a complex disorder that not only caused a lot of pain in
my Bear and our families, but would also take a lifetime of learning and care
to tend to.
To him I am the horrible girl
who kept hurting and hurting him.
To me he is the Bear who kept
loving and loving until he was convinced I didn’t love him.
If my condition was diagnosed
earlier, we don’t have to be on such different paths. If we had detected the
problem when the thread started running, and stitched it properly with external
support, it wouldn’t have run its course and eventually tore into two pieces of
wretched clothes.
He went back home.
I went to see the
psychiatrist he recommended. I told to the psychiatrist about all that happened
before. For the first time, I realized I might have bipolar.
After going home, I went
online to look up “bipolar” on wikipedia:
Individuals with bipolar
disorder experience episodes of a frenzied state known as mania (or hypomania), typically alternating with episodes of depression.
At the lower levels of mania,
such as hypomania, individuals appear energetic and excitable and may in fact
be highly productive. At a higher level, individuals begin to behave
erratically and impulsively, often making poor decisions due to unrealistic
ideas about the future, and may have great difficulty with sleep. At the
highest level, individuals can experience very distorted beliefs about the
world known as psychosis. Individuals who experience manic episodes also
commonly experience depressive episodes; some experience a mixed state in which features of both mania and depression
are present at the same time. Manic and depressive episodes typically last from
a few days to several months and can be interspersed by periods of
"normal"mood.
It made strange sense,
especially that part about “unrealistic ideas about the future”. We all know
about depression, but seldom hear about the unrealistic side of the “manic”
states.
I dug deeper and deeper.
There were a lot of matches in my behaviors and symptoms of manic-depression. I
saw another way of looking at my emotional abnormalities other than my
self-confidence or my character.
The first time I took pills
the doctor gave me, the confluence of the pills, eating dark chocolate and
reading sci-fi prompted me to write 10 pages of my emotional history in a few
hours. My brain was on a electrifying super-highway; my hands could hardly keep
up. All the relevant references of stories I’ve heard of: books I’ve read,
movies I’ve seen, celebrities who were also sufferers of bipolar, came to me
all at once looking like one bright light bulb.
That night was a classic
example of my “high” state. I thought if I could write everything down and show
it to my Bear, he would understand. In fact, everyone in the world would
understand.
The following week, the
psychiatrist started giving me mood-stabilizing medication.
Anyone who has taken mood
disorder meds could tell you: the drug makes you feel really awful and it’s
hard going through day-to-day life when you are adjusting to it.
I went through a very
difficult period of adapting to the drug. The following are some diary entries
from this painful time showed:
Depression
since early this morning.
Continuous
heartbreak into the PM. Couldn’t work. Crouched in the meeting room floor.
But
it passed after all. I have to remember it always passes. I got some energy
around 4pm. Ate candies and drank green tea.
Then
I got home late again (let me plan ahead next time). Hurt by the love songs.
Cried again tonight.
Going
to read books on depression that my brother gave me.
---
Brother’s
feedback today: Zone out when talking. Worse than before... Speech too fast or
too slow. Try too hard.
---
I had
my pills earlier last night (before 10). Fell asleep around midnight and was
sound asleep throughout the night.
In
the morning I dreamt of you. I dreamt that we were side by side. You were
really mad. I know. I tried to talk to you. Then I tried to kiss you all over
the face. And suddenly you kissed me all over the face back. Like cats do to
one another. Like old times. Then I woke, happy. Then I realized you were gone.
I was
too focused on my own pains that I didn’t realize how much hurt you. I was so
focused on my anger that I didn’t realize how much I adore you.
I do
love you. I love your smile. I love your smell - that was the first thing I
fell in love for you - the smell you made on your shirt. I love your chest. I
love resting on your chest. I love talking about tv shows with you. I love our
snack runs. I love it when we work in the same room and we suddenly remember
something and we yell across the room to each other. I love it when we held
each other till we fell asleep, like children do. I love the way you do the
Harlem Shake. I was so prideful and I never told you that you were so precious
to me. I just let you tell me that. I thought that was love. With that and
other things I got really sick and I never thought how much I hurt you. Or how
much I love you. I wish for the world to and would give my arm to undo the
hurt. But I can't tell you.
---
I
remember the day we went to The Beach. Before all the trouble began, we walked
around the small town. There’s a small fairground, a racing field. We had a
good sandwich breakfast on the road side. The days were quiet and good.
---
Still
struggling on how to tell you about my illness. I’ve struggled for over a month
now. Anything I said seemed to be misunderstood and denied... I am extra
careful. Really don’t know how to communicate my illness to you.
Saw
you again in my dreams this morning. I tried to sleep as much as possible
during the holidays so I could recover faster. Dr. T said sleeping was crucial.
I can’t quite grasp you in my dreams now, unlike before you seemed still so
close to me. Now you seemed like a concept... A song keeps playing in my
mind... “The most romantic thing I can think of, is to grow old with you...” We
haven’t talked for over two months now... how are you?
I
want to tell you that I’ve been learning the ukulele. My brother taught me how
to and I bought a ukulele with him yesterday. I like the sweet and soothing
sound of the instrument and it gives me a lot of relief. My brother has been a
great help to me through my treatment and medication.
…
With great difficulty, I read
the “self-confidence” book he bought me. Little by little, the tools made sense
to me as my brain had a chance to rest, heal and gel.
For the first time in a long,
long time, I could feel the emotional normality of other people.
With my temperaments finally
in check after extreme fluctuations over the years, my feelings for my Bear
came rushing back.
At first, all I could feel was
all the hurt that I had given my Bear. Every second of the day, the guilt in me
manifested as a continuously muted but forcible punch in my stomach.
That lasted for about a
month. Then, enigmatically, love feelings came back to me. I was so happy that
my love for my Bear was there all these time, only buried beneath my extreme
emotions. With the fights and my Bear being convinced that I never loved him, I
doubted my love for him too. Now with my emotions in check, the most absurd
mixed feeling kindled inside me: the sadness of the separation, the hurt of
being left behind, and the love feelings for my Bear were all blended together,
alive in me.
I think of him every day and
late into the night. I dream of him every morning, as soon as I reached REM.
I stormed through the
difficult times thinking about the love of my Bear. I insisted on working,
despite the fact that for a period I was simply unfit for work and I had no
idea when I would get better. The faith of being emotionally stable and
financially independent enough so not to burden my Bear (and can take care of
my Bear) kept me going, as I had told his dad clearly, albeit through tears, during
a phone call. I kept his encouragements, his reminders for my forgetfulness,
and his tips on handling difficult work situations, close to my heart.
Only after slowly rebooting
my brain and strengthening my cognitions through therapy that I realize my
emotional turmoil had ravaged my mind for years and depleted its resources like
a tsunami to a unprepared coastal town. I have consumed years in
unrealistic thoughts and destructive pursuits that had uprooted the life of
Bear and me. The hut is gone, our bond is broken.
Bipolar disorder costs twice
as much in lost productivity as major depressive disorder, a study funded by
the National Institutes of Health's (NIH) National Institute of Mental Health
(NIMH) has found. Each U.S. worker with bipolar disorder averaged 65.5 lost
workdays in a year, compared to 27.2 for major depression. Even though major depression is more than six times as prevalent, bipolar disorder costs the U.S. workplace nearly half as much —
a disproportionately high $14.1 billion annually. Researchers traced the higher
toll mostly to bipolar disorder's more severe depressive episodes rather than
to its agitated manic periods.
Everyone: the psychiatrist,
the psychologist, my parents, his parents, asked me to respect my Bear’s space
and rest and heal before contacting him. I took their advice.
For months, we kept my
brother and my learnings about the disorder to ourselves.
In the meanwhile, he and his
family slowly gave me up.
Since his family did not go
through the ordeal of treatment, they believe it was my thinking that mainly
caused our problems, despite the list of awful things that happened and were
left unexplained:
·
Why
have I started hiding myself suddenly two years ago? Before that I went to all
of his cousins weddings. I was there during Christmas unions. We had travelled
to different cities with his family, etc. Since two years ago, I started hiding
not only from you guys, but from my family and my friends? Everything we did
together seemed hopeless to me
·
Why
over a year ago I suddenly wanted to get a divorce? Then decided not to. Then
decided to try working in Hometown for a year, and wanted Bear to come with me?
·
Why
did I think I could not live in our city anymore and had to live on the Dream
Island, and wanted to spend the rest of my life on the Island? Why did I get
much worse when I finally made it there?
·
If
I really want to get a
divorce, and it's premeditated, why would I know not what to do afterwards? Why
do I find myself taking meds everyday, going to therapy every week, trying to
stay alert at work everyday, and managing my cycles every day? I ask myself
every day.
·
Why
did I feel compelled to resolve problems between Bear and I day after day,
night after night? Then cry uncontrollably?
·
If I
only wanted a better life and that's all I was after, why would I want to move
to Hong Kong? Bear knows that I had to take a big pay cut and the company I
joined was inhumane.
·
Why
did I cease to have love feelings? Wanted to be alone all the time?
·
Why
was I so eloquent about my pains, but couldn't even plan for the next day?
·
Why
couldn't I feel your pain, my Bear? Why couldn't I understand what people could
clearly see as overly passive and overly aggressive? For these I blame myself
every day and night.
·
Why
were my episodes only shown to you and seemingly not others (it turns out to be
not true)? It was not fair.
·
What
percentage was the disorder? What percentage was cognition?
·
Is it
true I will never change? Can I get better?
He promised he would follow
me home once when we got married.
We were supposed to come to
my hometown for a year.
After he left, we made a pact
to spend 6 months of separation time to think over what happened.
Those are all gone. After he
left, my husband quickly asked me to “move on”, citing that he has moved on.
This obviously became a new
source of stress for me as a bipolar patient. This and moving back to my
childhood room, discovering and dealing with a chronic disorder at a middle-age,
facing a possible lifetime of medication and loneliness, and most of all: deep misunderstanding
of my husband and his family, who had since stopped communicating with me and
my family.
I feel hurt that I don’t even
get a chance to share our learnings with them.
I constantly feel like being
tossed in the air, three-times over.
Starry, starry night
Paint your palette blue and
gray
Look out on a summer's day
With eyes that know the
darkness in my soul
Shadows on the hills
Sketch the trees and the
daffodils
Catch the breeze and the
winter chills
In colors on the snowy linen
land
Now I understand
What you tried to say to me
And how you suffered for your
sanity
And how you tried to set them
free
They would not listen, they
did not know how
Perhaps they'll listen now
(Vincent by Don
Mclean)
Remembering her good
Shy and timid, but generally
good-hearted.
Just as geeky as he is.
Understands all his nerdy jokes.
Very sweet to him (he said
“her sweetness” was what was most attractive quality about me when we got
married).
When we first held our hands,
we held them for hours, feeling so lucky we had found one another. The other who
fully accepts you.
Giggled when we played silly
games.
Those eternal days we walked
in the nice summer weather, not doing much other than enjoying each other’s
company.
I married him almost right
after college.
I followed him to the town
where he wanted a job at the famous company. He later hated that job, but we
stayed in that city.
I never had time to grow as a
girl on my own. When I finally did, he was gone.
I love him. I miss him. I
miss our days in the sun, however brief and however long the winters were. The
eternal sunshine of a spotless mind.
A spotless.
Mind.
Those days felt like eternal
at the time.
Eventually we had to grow up,
unprepared as we were.
In the most violent way.
I am so sorry.
Treatment has not been easy
breezy. I fall back into anger, depression and unrealistic ideas a lot,
especially during times of communications or miscommunications with my husband
and his family.
As my mind gets healthier. I
start feeling the subtle emotions that normal people have: instead of crying, I
can weep. Instead of yelling, I can whisper. Instead of anger, I feel love. I
am no longer too shortsighted or too farsighted. I can see things in the their
proper distance.
Emotional resilience. It’s
finally possible for me – but he’s gone.
Sometimes a dream does come
true – the cruel joke of life is, when it happens, the dreamer no longer wants
it. In fact, he only wishes to end it.
6 months after he left, I get
the confusing feelings of falling in love with him in our first months of
meeting. All the raw emotions that prompted me to fall in love with him rush to
me like a returned tide every morning and throughout the day. Like a raw image
recorded by the most high-res SLR camera, although it has been diluted and
pixelated by my cyclically bipolar brain over the years, it turns out the
original file has always been there inside my mind, intact, unblemished.
I don’t know where the
feelings come from or why they come back. They do make me see clearly why we
chose each other: I am his special girl and he is my special boy. As simple as
that.
But I cannot be a solace to
him anymore. Angry. Feeling cheated. In a new city. Bearing pain that only he
could feel.
I’ve hurt the dearest person in
my life. The same person I still dream of tenderly every morning.
This is a pretty ridiculous
separation for a pair of college sweethearts who have been together for 12
years, got married and supported each other’s dreams for many of those years:
they move to another city, the girl keeps throwing tantrums and saying
extremely hurtful words, the guy leaves the other city and starting a life in a
place unknown to the girl, their families never talked again except for two
1.5-hour phone calls.
Curiouser and curiouser.
Stranger and stranger yet.
It started when a girl with
the wrong genes never learned to be assertive as a child.
It started as someone
watching too much tv.
Be forewarned.
Protect yourself and your
loved ones from emotional disorders.
They are only all too real.
-END-
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